Find out more about Clare and her work
Clare Fuller RGN MSc
Contact Clare Fuller - Advance Care Planning Advocate
My name is Clare and I use the experience and skills developed throughout my career to deliver consultancy work for:
Teams looking to improve EoLC service or prepare for CQC
EoLC education
Lasting Power of Attorney
Proactive Advance Care Planning is a theme linking each service, and my work includes raising public awareness through Talks and Presentations
I believe passionately in proactive Advance Care Planning, campaigning to raise public awareness and professional understanding. I have seen first-hand and too often what can happen when vital conversations and plans are left too late and am on a mission to normalise talking about what matters most. You will find some great resource to support Advance Care Planning on the blog and, video and through my publications.
Launching Conversations About Advance Care Planning in January 2022 is something I an exceptionally proud of. The weekly podcast explores Advance Care Planning, what it is, how to do it and why it matters through a series of conversations. Each episode has some fabulous resource and every guest focuses on a specific area of Advance Care Planning. The series shows that Advance Care Planning and it fits in with normal life planning. You can subscribe to podcast through all the usual providers.
My career and experience
I am a Registered General Nurse and have specialised in providing care for people at the end of life working in hospices, the community and acute hospitals.
I have worked in a national role for the Gold Standards Framework (GSF) to deliver the acute hospital GSF programme, supported delivery of the NHS Five Year Forward View plan working for local Clinical Commissioning Group and as a Director for a Practice Alliance. I completed an MSc in Advanced and Specialist health care and have experience presenting at conferences. My career has included clinical practice, education and quality assurance. I continue to work as a Specialist Advisor for the Care Quality Commission.
In 2020 I cared for a close relative at the end of life and experienced the challenges of working in a system that just doesn’t join up. It was a salutary lesson, making me question just how difficult it must be if you don’t have the luxury of background knowledge. It also provided a catalyst for my career change and you can read more here in an article published by the British Journal of Community Nursing.
Outside of work I enjoy travelling, attempting to grow vegetables, running and am a keen yoga practitioner. I am also a qualified fitness instructor and recently gained the PADI SCUBA diving certificate – a couple of ticks on my bucket list.
If you would like to find out more about my work, or have a question about Advance Care Planning I would love to hear from you.
Let’s keep having Important Conversations about Important Conversations.
Publications & blogs
Fuller, C. (2025). Open Justice Court of Protection Project. If this had been my first court observation, it would have been my last! Available at: https://openjusticecourtofprotection.org/2025/04/17/if-this-had-been-my-first-court-observation-it-would-have-been-my-last/ [Accessed 22.4.2025]
Fuller, C. (2024). The QNI . Sharing your work through podcasts. Available at: https://qni.org.uk/sharing-your-work-through-podcasts/[Accessed 21.9.24]
Fuller, C (2023). guest article for Vintage: What is Advance Care Planning, and why should I care about it? Available at: https://vforlife.org.uk/blog/post/vintage-magazine-issue-3 [Accessed 6.2.24]
Fuller, C. (2023). Open Justice Court of Protection Project. The logic, law and language of Lasting Power of Attorney: A case before Hayden J Available at: https://openjusticecourtofprotection.org/2023/07/12/the-logic-law-and-language-of-lasting-power-of-attorney-a-case-before-hayden-j/
Fuller, C. (2021). Open Justice Court of Protection Project. What happens when Lasting Power of Attorney goes wrong? Available at: https://openjusticecourtofprotection.org/2021/10/07/what-happens-when-lasting-power-of-attorney-goes-wrong/
Fuller, C. (2021). Open Justice Court of Protection Project. Lasting Power of Attorney: Across borders. Available at: https://openjusticecourtofprotection.org/2021/08/11/lasting-power-of-attorney-across-borders/
Fuller, C. (2020). Open Justice Court of Protection Project. Bearing Witness: Anorexia Nervosa and NG Feeding. Available at: https://openjusticecourtofprotection.org/2020/08/17/bearing-witness-anorexia-nervosa-and-ng-feeding/
Fuller, C. (2021). Open Justice Court of Protection Project. Reflecting on Re MW and Advance Planning: Legal frameworks and why they matter https://openjusticecourtofprotection.org/2022/01/04/reflecting-on-re-mw-and-advance-planning-legal-frameworks-and-why-they-matter/
Fuller, C. (2022). Open Justice Court of Protection Project. Decision-making with clarity and compassion: Validity of LPAs and appointment of Deputy Decision-making with clarity and compassion: Validity of LPAs and appointment of Deputy
Fuller, C. (2021) How to assign a Lasting Power of Attorney (LPA) In MyWishes Tutorial, Advance care plan By MYWISHESLEARN Available at: https://learn.mywishes.co.uk/lasting-power-of-attorney/
Fuller, C. (2020). Don’t Leave it Too Late to Talk. British Journal of Community Nursing. Volume 25 (3), pp109.
Fuller, C. (2021). End-of-life care: perspective of a relative rather than a professional. British Journal of Community Nursing. Volume 26 (4), pp176-178.
Fuller, C. (2021) Clare Fuller – TG Associate https://tessagough.co.uk/clare-fuller-tg-associate
Fuller, C (2023) guest article for Vintage: What is Advance Care Planning, and why should I care about it? Available at: https://vforlife.org.uk/blog/post/vintage-magazine-issue-3
External podcasts
Fuller, C (2025 ) MENOMORPHOSIS #108: Planning For End Of Life Care With Clare Fuller. Available at: https://www.pollywarren.com/podcast [Accessed 25.3.2025]
Fuller, C. (2024). Small Business Big Network Podcast. #164 A supportive peer network is invaluable. Available at: [Accessed 4.3.2024]A supportive peer network is invaluable
Fuller, C. (2023). Medics Money Podcast. #139 Why you need a Lasting Power of Attorney with Clare Fuller. Available at: https://www.medicsmoney.co.uk/ep-139-why-you-need-a-lasting-power-of-attorney/
Fuller, C. (2023). Magnificent Midlife Podcast episode132 Later life planning with Clare Fuller. Available at: https://magnificentmidlife.com/podcast/132-later-life-planning-clare-fuller/
Fuller, C. (2023). Waiting Room Revolution S7: Episode 81 Advance Care Planning with Clare Fuller. Available at: https://www.waitingroomrevolution.com/podcast/episode/2cd01fb0/s7-episode-81-clare-fuller
Fuller, C. (2020). The Business of Healthcare Podcast. #92 Lasting Power of Attorney with Clare Fuller. Available at: https://thebusinessofhealthcare.libsyn.com/92-lasting-power-of-attorney-with-clare-fuller
Fuller, C. (2020). The Business of Healthcare Podcast. #55 End of Life Care with Clare Fuller. Available at: https://thebusinessofhealthcare.libsyn.com/55-end-of-life-care-with-clare-fuller
External YouTube guest appearances
Carol Forde-Johnston (2023) Advance care Planning made simple [online video] Available at: https://www.youtube.com/watch?v=WkoxfvZNw2k&t=1269s [Accessed 2.2.24]
Carol Forde-Johnston (2024) Advance Decision to Refuse Treatment [online video] Available at: https://www.youtube.com/watch?v=VADvQ3temV0&t=429s [Accessed 2.2.24]
Collaborations
Fuller, C. Norris, J & Ayre, D. (2024) Collaborators for first UK National Advance Care Planning Day (8.5.24) Available at https://advancecareplanday.org/ [Accessed 20.5.24]
Fuller, C. (2021) What Works Centre for Wellbeing. Contributor to the Wellbeing Conversations at the End of Life Project. Advance care planning: just a normal part of life planning. https://whatworkswellbeing.org/wp-content/uploads/2021/09/WWW-Briefing-Dying-Well.pdf
My Wishes tutorial: How to assign a Lasting Power of Attorney By Clare Fuller, September 2021
My Care Matters Handbook and LPA service
Webinar: What to Expect: A Guide to Prostate Cancer (a Prostate Cancer Research and Ipsen collaboration 2022). In webinar 8 Clare Fuller and Debbie Victor present the emotional, spiritual, and mental aspects of end-of-life care and the planning it may require End of Life Care: What to expect and how to plan
Conference Presentation
2024. IPSEN Education Exchange. Birmingham. Advance Care Planning: Empowering Patients to take control
2024. Norfolk and Norwich University Hospitals. 35th Norfolk Palliative Care Conference Getting Your House in Order. Session Who Would Speak for You? and Panellist for “Advance Care Planning Journeys” Available at: https://advancecareplanday.org/acp-conference/ [Accessed 20.4.24]
2024. Marie Curie Research Conference 2024 Improving End of Life for all. Chair for the panel discussion on Advance Care Planning. Available at: https://events.zoom.us/ev/AnI6pWWmmeOayeM1C-EAXhnn565KBcl1CQc7Hrp8OuoXa8q6oTaQ~AggLXsr32QYFjq8BlYLZ5I06Dg [Accessed 29.2.24]
2023. Diabetes Professional Care Conference, Kensington Olympia. Advance Care Planning, turning frameworks into actions.
2023. IPSEN Education Exchange. Birmingham. Advance Care Planning: If not you then who?
2021. Diabetes Professional Care Conference, Kensington Olympia. Diabetes, frailty & End of Life Care. Co-presented with Dr David Strain.
2016. Gold Standards Framework and the British Geriatrics Society. DNACPR and what we can learn from the Janet Tracey case