#11 No Barriers Here

In this inspirational episode I talk with Gemma and Jed about the No Barriers Here work; we discuss their innovative co-productive Advance Care Planning work and learn stories behind the No Barriers Here film.

Key messages from Gemma and Jed

• How No Barriers Here has grown to represent groups that are traditionally excluded in End of Life Care.

• Inequality in care can apply to the opportunities to for conversations as well as the delivery of care.

• The importance of taking Advance Care Planning into the community and normalising these conversations.

• The value of working with people who have lived experience.

• The iterative nature of true co-production work, constantly learning and shaping the approach.

• The great leveller that mortality is for us all.
  

Resource

• Find out more about the No Barriers Here co-production group

• Watch the No Barriers Here Video 

• Connect on Twitter @NoBarriersHere 

• For information about No Barriers Here: Train the Trainer, please contact gemma.allen@marystevenshospice.co.uk

• For more information on barriers faced by diverse groups in the UK read A Place for Everyone - What stops people from choosing where they die? A review of the barriers to good end of life care facing diverse groups in the UK  

  Gemma Allen is the Palliative Care Inclusion and Community Partnerships Lead at The Mary Stevens Hospice. Her passion for equitable palliative and end of life care has resulted in her working with, and alongside, underserved communities, enabling access and increasing awareness of palliative and end of life care.  Gemma has a keen interest in public health approaches to palliative care, research, education and Advance Care Planning.  Gemma is also the Chair of the Palliative Care of People with Learning Disabilities (PCPLD) Network.

  
  Dr Jed Jerwood (PhD) is Principal Art Psychotherapist at Birmingham and Solihull Mental Health Foundation Trust and Honorary Research Fellow at the University of Birmingham with interests in health inequalities, death dying and mental health. He is passionate about how the arts can be used to support better communication and understanding of difference between healthcare professionals, patients and families. His doctoral research focused on understanding barriers and improving access to palliative care for people with severe mental illnesses. Jed is the lead researcher for the No Barriers Here programme.

Find out more about my Bespoke Consultancy

• Service analysis for teams seeking to improve EoLC or prepare for CQC

• End of Life Care Education

• Lasting Power of Attorney Consultancy

• Talks and presentations

If you’d like to find out more about my work contact me.

What one thing will you do?

It would be great to share what resonated with you from this episode, what is the one thing you will do differently? Head to Twitter, Facebook or LinkedIn to continue these important conversations.

Thanks to all my guests for working with me to share their knowledge, experience and stories about Advance Care Planning. I hope you enjoyed listening and have insights to take away; I love hearing your reflections on the series and look forward to reviews on Spotify where you can also subscribe to the series.

Clare

Important Conversations about Important Conversations.

Podcast edited by Martin Whiskin.