#127 Planning for ACP Day 2025: Dani, James and I talk Advance Decision to Refuse Treatment and Lasting Power of Attorney

In the second of our behind-the-scenes series of podcasts, Dani, James and I continue sharing plans for the 2025 ACP Conference.

In this episode, we focus on the Advance Decision to Refuse Treatment session with Professor Celia Kitzinger, and the professional lens through which I will be presenting the session on Lasting Power of Attorney. I’ll be including things that every health care professional needs to know about LPAS.

The conference, and national ACP Day is on the 7th May. Listen to find out how you and your team can be part of the growing movement.

Key messages

• We reflect on progress with the ACP Day and ACP Conference, acknowledging how well it links to the theme of “The Culture of Dying Matters”

• Professor Celia Kitzinger will be presenting on Advance Decisions to Refuse Treatment and learning from the Open Justice Court of Protection Project

• I talk about the presentation in which I’ll be talking about what every health care professional needs to know about Lasting Power of Attorney

• We’re asking people to let us know how you document Lasting Power of Attorney documentation in your place of work

• The full agenda is now on the ACP Day Conference section

• Dani shares info on the wealth of stands that will be

Resource

• Find out more about Advance Care Planning and ACP Day 2025 at:  ACP Day 2025  

• Access the  Open Justice Court of Protection Project 

• Listen to the podcast Advance Decisions to Refuse Treatment with Celia Kitzinger  

• Access the Advance Care Plan Day website where you can find all 2025 conference details, resource, ways to be involved and how to make a pledge.

  #ACPDay2025 for tags on social media

Bio

Dani Ayre

Dani is Matron and Lead Nurse for Palliative Care currently working at Norfolk and Norwich University Hospital. She has over 15 years’ experience in Palliative and End-of-Life Care (PEoLC). She previously worked in Gibraltar for over 8 years, implementing and leading a Hospice Outreach Service for the community of Gibraltar. She has also worked in the community in Palliative care and Long Term conditions and briefly in the acute sector. 

Dani has furthered her knowledge throughout her career by achieving a Distinction in her PG Certificate at Masters level in Palliative Medicine and completed 2 further Masters modules in leadership and education in Palliative care. She is passionate about raising awareness and educating on Palliative care and the importance of Advance care Planning  not only to Health care professionals and the general public.

James Norris

James is the founder of MyWishes and the Digital Legacy Association.  He also holds the post as the Digital Research Fellow at Michael Sobell Hospice (London) 

Over the last 13 years James has developed and explored the use of technology to help improve end of life communication, planning and care.

In 2015 he launched the Digital Legacy Association CIC at Hospice UK’s annual conference to support professionals and the general public in areas relating to digital assets planning and digital legacy. The Digital Legacy Association argues that ‘planning for death digitally should form a holistic approach to advance care planning’.

MyWishes takes both a public health approach and a digital first approach to advance care planning. It educates and empowers society to document their future health and wider wishes. Its content, structure and design has been developed to help introduce care planning to society at an early stage and normalise this behaviour by incorporating it alongside other better known tasks (will writing, funeral planning, bucket lists etc). MyWishes only works with the NHS, local councils and the charity sector. It is free for all to use. MyWishes has been ‘hyperlocalised’ to help support different regions’ unique, health ecosystems. The Wellbeing Hub for example, is only available for MyWishes users who live in the Hillingdon Borough of London. 

James continues to consult various governmental and non-governmental organisations across the globe in areas relating to death and the internet. He provides thought leadership in areas relating to death, bereavement, technology and the internet on TV, online, print and in scientific journals. Appearances and publications range from BBC Breakfast and the BBC’s Morning Live to the New Scientist and Vice magazine. James has also held the post as the Design Research Fellow at the Velindre Cancer Centre (Cardiff) for the last six years.