#128 Planning for ACP Day 2025: Dani, James and I talk legacy and Organ Donation

In the third of our behind-the-scenes series of podcasts, Dani, James and I continue sharing plans for the 2025 ACP Conference.

In this episode, we continue sharing guest speakers and reflecting how each session aligns to the framework of Getting Your House in Order. Exploring the window of legacy, we are honoured to have Vicky Caldwell sharing her experience as Mother of organ donor Fi. We reflect on organ donation as a legacy and highlight the difference made by Max and Kiera’s Law.

The conference, and national ACP Day is on the 7th May. Listen to find out how you and your team can be part of the growing movement.

Key messages

• James shares info on the shared with E-Hospice, contact your communication team to check

• Dani confirms the agenda is now ready and on the website

• We reflect on our wonderful speaker Vicki Caldwell and how privileged we are to have Vicki talk about her experience as Mum of organ donor Fi.

• James shares insights from the Digital Death Report

• Watch party

Resource

• Listen to the podcast Organ Donation: hope and transition after an unexpected death with Vicki Caldwell, mother of organ donor Fi. 

• Find out more about Advance Care Planning and ACP Day 2024 at: Advance Care Planning Conference 2024 

  #ACPDay2025 for tags on social media

Bio

Dani Ayre

Dani is Matron and Lead Nurse for Palliative Care currently working at Norfolk and Norwich University Hospital. She has over 15 years’ experience in Palliative and End-of-Life Care (PEoLC). She previously worked in Gibraltar for over 8 years, implementing and leading a Hospice Outreach Service for the community of Gibraltar. She has also worked in the community in Palliative care and Long Term conditions and briefly in the acute sector. 

Dani has furthered her knowledge throughout her career by achieving a Distinction in her PG Certificate at Masters level in Palliative Medicine and completed 2 further Masters modules in leadership and education in Palliative care. She is passionate about raising awareness and educating on Palliative care and the importance of Advance care Planning  not only to Health care professionals and the general public.

James Norris

James is the founder of MyWishes and the Digital Legacy Association.  He also holds the post as the Digital Research Fellow at Michael Sobell Hospice (London) 

Over the last 13 years James has developed and explored the use of technology to help improve end of life communication, planning and care.

In 2015 he launched the Digital Legacy Association CIC at Hospice UK’s annual conference to support professionals and the general public in areas relating to digital assets planning and digital legacy. The Digital Legacy Association argues that ‘planning for death digitally should form a holistic approach to advance care planning’.

MyWishes takes both a public health approach and a digital first approach to advance care planning. It educates and empowers society to document their future health and wider wishes. Its content, structure and design has been developed to help introduce care planning to society at an early stage and normalise this behaviour by incorporating it alongside other better known tasks (will writing, funeral planning, bucket lists etc). MyWishes only works with the NHS, local councils and the charity sector. It is free for all to use. MyWishes has been ‘hyperlocalised’ to help support different regions’ unique, health ecosystems. The Wellbeing Hub for example, is only available for MyWishes users who live in the Hillingdon Borough of London. 

James continues to consult various governmental and non-governmental organisations across the globe in areas relating to death and the internet. He provides thought leadership in areas relating to death, bereavement, technology and the internet on TV, online, print and in scientific journals. Appearances and publications range from BBC Breakfast and the BBC’s Morning Live to the New Scientist and Vice magazine. James has also held the post as the Design Research Fellow at the Velindre Cancer Centre (Cardiff) for the last six years.