Advance Care Planning: translating frameworks into practice

Course overview

Recent publications have highlighted the need to improve Advance Care Planning. Findings from CQC’s  Protect, respect & connect call for a consistent national approach, which is echoed by the Parliamentary and health  Service Ombudsman End-of-life care: improving 'do not attempt CPR' conversations for everyone . Recommendations from the National Confidential Enquiry into Patient Outcome and Death include the provision of parallel planning and normalising planning ahead, suggesting this is appropriate to all patients with life limiting disease.

 

This course is designed to build knowledge, confidence, and competence in Advance Care Planning (ACP) by translating national frameworks and recommendations into clinical practice.

  • “There is a need for a consistent national approach to advance care planning and DNACPR decisions, and a consistent use of accessible language, communication and guidance to enable shared understanding and information sharing among commissioners, providers and the public.”

    Protect, respect, connect

  • “People, their families and representatives need to be supported, as partners in personalised care, to understand what good practice looks like for DNACPR decisions. People, their families and/or representatives, clinicians, professionals and workers need to be supported so that they all share the same understanding and expectations for DNACPR decisions. People need to have more positive and seamless experiences of care, including DNACPR decisions, when moving around the health and care system.”

    Protect, respect, connect – decisions about living and dying well during COVID-19

  • “We call for all outstanding recommendations in CQC’s ‘Protect, respect, connect – decisions about living and dying well during COVID-19’ to be implemented”

    End-of-life care: improving 'do not attempt CPR' conversations for everyone

  • "Normalise conversations about palliative/end of life care, advance care plans, death and dying”

    National Confidential Enquiry into Patient Outcome and Death

    • Understand legislation that underpins Advance Care Planning (ACP) in clinical practice

    • Integrate national standards into care planning and decision-making

    • Develop skills for compassionate, person-centred conversations

    • Understand Lasting Powers of Attorney in your professional role and practice

    • Initiate and manage conversations around Advance Decisions to Refuse Treatment (ADRTs), ensuring discussions are patient-led and documentation is legally robust

    • Learn best practice for DNACPR conversations and processes (including ReSPECT)

    • Align Advance Care Planning practice with local clinical pathways, policies, and documentation systems

  • The course is for healthcare professionals working in hospitals and community care.

  • 1. An overview of Advance Care Planning

    2. An understanding of LPAs and ADRTs

    3. Advance Care Planning in End-of-Life Care

    4. CPR: when does it save a life and when does it spoil a death?

    5. What Matters Most to You Conversation skills

  • 1. An overview of Advance Care Planning

    • Introduction to Advance Care Planning 

    • Awareness of relevant NICE guidance, research and national frameworks

    • Getting Your House in Order: Advance Care Planning for any patient in any setting

    • Your role in Advance Care Planning

    • Key points in an illness trajectory and when to consider Advance Care Planning

    2. An understanding of LPAs and ADRTs

    What is a Lasting Power of Attorney is and how to ensure LPAs are part of your patient’s plans

    • How to create an LPA

    • How to check the validity of an LPA

    • The role of the Court of Protection

    Advance Decision to Refuse Treatment and the legal framework underpinning ADRTs

    • How to create an ADRT

    • Common pitfalls

    • How ADRTs and LPAs work together

    3. Advance Care Planning in End-of-Life Care

    • Understanding what we mean by End of Life

    • Identifying tools available to identify patients approaching the End of Life

    • Advance Care Planning in the last days of life

    4. CPR: when does it save a life and when does it spoil a death?

    • DNACPR: myth, reality and conversation skills

    • Legal frameworks and key case studies

    • Recognition of Ordinary Dying

    • Developing knowledge and skill to implement ReSPECT

    5. What Matters Most to You Conversation skills

    • How to introduce a What Matters Most approach to care of your patients

    • Resource to support effective  DNACPR discussions

    • Develop conversation skills to underpin Advance Care Planning

    • Understand the changing hope in a long-term illness

  • Each session will include discussion on how Advance Care Planning aligns to your local are. There will be opportunity to identify how to map your local guidance to best practice and you will gain knowledge and confidence in implementing Advance Care Planning.

  • Facilitators: Clare Fuller & Dani Ayre
    Leaders in Advance Care Planning Education

    Clare Fuller and Dani Ayre bring a powerful blend of clinical expertise, national influence, and educational leadership to their work in Palliative and End-of-Life Care (PEoLC) and Advance Care Planning (ACP). With decades of combined experience, they are passionate advocates for Advance Care Planning.

    Together, Clare and Dani co-founded the National Advance Care Planning Conference and Awareness Day, in collaboration with James Norris of MyWishes and the Digital Legacy Association. The inaugural 2024 event attracted over 300 attendees and was streamed globally. Following the conference, they led a UK-wide tour alongside bestselling authors Dr. Hsien Seow and Dr. Sammy Winemaker to promote 7 Keys to Navigating a Life Changing Illness.

     

    Clare Fuller is a Registered Nurse with over 30 years of experience across hospice, community, and acute care settings. She has served as a Consultant Nurse for the Gold Standards Framework and CQC Specialist Advisor. Clare is also a Lasting Power of Attorney Consultant and currently sits as a Commissioner for the Parliamentary Commission on Palliative and End of Life Care. As Director of Speak for Me, she delivers national education and consultancy services on Advance Care Planning and hosts the Conversations about Advance Care Planning podcast.

    Dani Ayre is the Matron and Lead Nurse for Palliative Care at Norfolk and Norwich University Hospital, with over 15 years of clinical experience. She previously led a Hospice Outreach Service in Gibraltar and has worked across community, long-term conditions, and acute care. Dani holds a Postgraduate Certificate with Distinction in Palliative Medicine and additional Master's-level training in leadership and education. She is a dedicated educator and advocate for high-quality, person-centred care planning.

    Together, Clare and Dani offer a dynamic, grounded, and compassionate approach to Advance Care Planning education—equipping professionals and communities alike with the tools to navigate the most important conversations of life.

  • This course can be held at your organisation for up 25 delegates. Content can be tailored to suit your organisation and staff needs. The course is also available on-line and as individual sessions.

    • Full day session

      • £2,250

        • For a team up to 25 on site (plus travel expenses) or online

      • £299

        • Individual delegate on site or on-line. Minimum 8 delegates, maximum 25 delegates

    • Individual session

      • £500

        • On site or on-line for a team up to 25

      • £75

        • Individual delegate on site (plus travel expenses) or on-line. Minimum 8 delegates, maximum 25 delegates

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