Welcome to conversations about Advance Care Planning. This is the podcast where we talk about Advance Care Planning, what it is, how to do it and why it matters. Conversations about Advance Care Planning has grown from my passion to support professional understanding and promote public awareness about planning ahead.
#114 Better End of Life Report 2024. What we can learn about the current experience of end of life care in England and Wales with Professor Fliss Murtagh 15.12.24 In this episode it is my pleasure to catch up with Fliss Murtagh, Professor of Palliative Care at the Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull. Fliss talks through the 2024 Better End of Life Report and, to be frank, it’s a hard listen. The gaps and inadequacy of care are identified, with clear next steps for how we can and must do better. See show notes and resource.
OMi (OM Interactive), kindly supplied sponsorship to produce this episode. OMi has had no influence in the creation, development or content of this podcast and full control remains the responsibility of Clare Fuller
#113 Advance Care Planning: a firefighter’s perspective with John Barlow 09.12.24 In this episode it is my pleasure to talk with John Barlow, a firefighter in Essex and London. The acute risk of the role is something we are familiar with, but John shares data on the longer term health risks associated with the profession. With this in mind, we explore how familiar fire fighters are with planning ahead, and what elements of Advance Care Planning could be appropriate. See show notes and resource.
#112 Lasting Power of Attorney: a younger person’s perspective with Robyn Fuller 02.12.24 In this episode it is my pleasure to talk with the most special guest I have had so far - my daughter Robyn. We talk about Lasting Power of Attorney through the eyes of a younger person, challenge common perceptions and talk about ways that could make LPAs more relevant to young people. See show notes and resource.
#111 Clare & Dani explore public awareness of DNACPR & ReSPECT 25.11.24 In this episode it is my pleasure to catch up with Dani and explore public awareness about DNACPR and ReSPECT. We highlight some key challenges, share what’s happening in our local patches and would love to hear from anyone with experience of delivering a public awareness ReSPECT campaign. See show notes and resource.
#110 Our Special Friends with Dr Bin Johnston 18.11.24 In this episode it is my pleasure to talk with Dr Bin Johnston, founder of the Suffolk based charity, ‘Our Special Friends. This incredible charity provides human-animal support services to vulnerable people with a love of animals. In discussion with Bin we explore the diverse work of Our Special Friends, Advance Care Planning inclusive of pets and the concept of animal inclusive communities. We acknowledge that What Matters Most to a person can be the welfare of their animal.
#109 What Matters to You from a carers perspective with Thomas Whitelaw 11.11.24 In this episode it is my pleasure to talk with Thomas Whitelaw, National Lead for Person Centred Voices and know by many as Tommy on Tour. We explore What Matters to You from a carers perspective and Tommy shares how the experience of caring for his Mum proved the catalyst for the incredible work he does today. You can access the resource Tommy refers to in our conversation https://linktr.ee/personcentred
#108 Advance Care Planning: Reflecting on collaborations with Dani Ayre and the Waiting Room Revolution Team 04.11.24 This episode features a conversation and great catch up with Dani Ayre and the Waiting Room revolution Team. We discuss how the Advance Care Planning Conference developed, and the joy of working together for the Hope for the Best Plan for the Rest UK road tour. We also explore the next steps in bringing the principles of the Waiting Room Revolution to the UK. See show notes and resource.
The Waiting Room Revolution podcast theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Visit the Waiting Room Revolution website to learn more about theiwork, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
#107 Assisted Dying, Advance Care Planning and the choices we have now 24.10.24 This episode expands on a discussion I had with Nick Ferrari from LBC around assisted dying, specifically in response to Wes Streeting statement that he is “not sure that as a country we have the right end-of-life care available to enable a real choice on assisted dying.” It’s my first solo episode and I explore the reality of end-of life-care provision, debunk some of the emotive discussion around assisted dying and share the choices we all have now. See show notes and resource.
#106 Leaving Gracefully with Beverley Bulmer 21.10.24 In this episode it is my pleasure to speak with Beverley Bulmer, a Funeral Celebrant and founder of Leaving Gracefully, End of Life Planning. We explore the difference it can make when plans are in place, when and how to take the first steps and what Leaving Gracefully can offer. See show notes and resource.
#105 Poverty & care at the end of life with Sam Royston 14.10.24 In this episode we discuss the Marie Curie 2022 Dying in Poverty report and what has changed in the two years since it’s been published. We also explore the Better end of life care report, published in September 2024, and the duel need to raise awareness and take action. See show notes and resource.
#104 What Matters to You with Karen Turner 07.10.24 See show notes and resource.
#103 Diagnosing Dying & the power of words with Dr Joe Hawkins 30.09.24 See show notes and resource.
#102 Clare & Dani reflect: Interventions and CPR 23.09.24 See show notes and resource.
#101 Ageing Without Children and Advance Care Planning with Penny Shepherd 16.09.24 See show notes and resource.
#100 Planning not panicking: Advance Care Planning with Martin Whiskin 01.07.24 See show notes and resource.
#99 The Victoria & Stuart Project: helping people with learning disabilities plan for the end of their life 24.06.24 See show notes and resource.
#98 Stopping chemotherapy: Treatment, hope and time with Louisa Nicoll, wife of John 17.06.24 See show notes and resource.
#97 The End of the Road Show - how the arts can support Advance Care Planning with Su Squire 10.06.24 See show notes and resource.
#96 Advance Care Planning: making it real with Tara Humphrey 03.06.24 See show notes and resource.
#95 Organ donation with Dr Radha Sundaram 27.05.24 Listen and see show notes and resource.
#94 What we can learn about S46 funerals and Advance Care Planning with Evie King 20.05.24 Listen and see show notes and resource.
#93 Dying Matters with Dr Lucy Pain 13.05.24 Listen and see show notes and resource.
#92 Getting Your House in Order: Planning End of Life Care with Clare Fuller & Dani Ayre 06.05.24 Listen and see show notes and resource.
#91 Getting Your House in Order: Legacy & memory making with Clare Fuller & Dani Ayre 29.04.24 Listen and see show notes and resource.
#90 Getting Your House in Order: Thinking about who would speak for you with Clare Fuller & Dani Ayre 22.04.24 Listen and see show notes and resource.
#89 Getting Your House in Order: Thinking about what you don’t want with Clare Fuller & Dani Ayre 15.04.24 Listen and see show notes and resource.
#88 Getting Your House in Order: Thinking about the things you do want with Clare Fuller & Dani Ayre 08.04.24 Listen and see show notes and resource.
#87 Getting Your House in Order: Thinking about what matters most to you with Clare Fuller & Dani Ayre 01.04.24 Listen and see show notes and resource.
#86 Think, Talk, Act with Wendy Hills 25.03.24 Listen and see show notes and resource.
#85 The Safari Concept with Dr. Christian Ntizimira 18.03.24 Listen and see show notes and resource.
#84 Alison Gardner & Sophy Horner Last Days Matter 11.03.24 Listen and see show notes and resource.
#83 Lasting Power of Attorney with Gary Rycroft 04.03.24 Listen and see show notes and resource.
#82 What living well with dementia looks like with Peter Berry and Deb Bunt 26.02.24 Listen and see show notes and resource.
#81 Talking through the intersection between critical care & EoLC 19.02.24 Listen and see show notes and resource.
#80 Why I started a Death Café with Ewout Van-Manen 12.02.24 Listen and see show notes and resource.
#79 Helping to see the person behind the patient with OT Justine Robinson 05.02.24 Listen and see show notes and resource.
#78 Advance Care Planning: Listening not box ticking with Professor Alison Leary 29.01.24 Listen and see show notes and resource.
#77 What Matters Most in action and the power of Communication and kindness with Caroline England. 22.01.24 Listen and see show notes and resource.
#76 Companion Voices with Judith Silver. 15.01.24 Listen and see show notes and resource.
#75 Having fun with Advance Care Planning. 23.10.23 Listen and see show notes and resource.
#74 Changing plans, anticipatory grief and planning ahead. 16.10.23 Listen and see show notes and resource.
#73 What we need to do after a person has died at home. 09.10.23 Listen adnd see show notes and resource.
#72 What changes are there as someone approaches the end of life? 02.10.23 Listen and see show notes and resource.
#71 Symptom control and medication as someone approaches the end of life at home. 25.09.23 Listen and see show notes and resource.
#70 What equipment might be needed to help look after a person who is dying at home. 18.09.23 Listen and see how notes and resource.
#69 Dying at home, what you need to know and how to be prepared - What support is available to help look after a person who is dying at home. 11.09.23 Listen and see show notes and resource.
#68 Dying at home, what you need to know and how to be prepared - Recognising when someone might be in the last stages of life. 04.09.23 Listen and see show notes and resource.
#67 Why we need to talk more about Ordinary Dying with Lizzi Collinge. 28.08.23 Listen and see show notes and resource.
#66 Terminology and language around discontinuing dialysis with Dr Barny Hole & Dr Emma Murphy. 21.08.23 Listen and see show notes and resource.
#65 Living and Dying with Kidney Disease with Dr Barny Hole & Dr Emma Murphy. 14.08.23 Listen and see show notes and resource.
#64 Mental Capacity: it’s decision specific, not a binary concept with Dr Maggie Keeble. 07.08.23 Listen and see show notes and resource.
#63 Advance Care Planning through the lens of a surgeon, daughter and patient with Dr Liz O’Riordan. 31.07.23 Listen and see show notes and resource.
#62 David Bowie & Advance Care Planning: a conversation with Prof. Mark Taubert. 24.07.23 Listen and see show notes and resource.
#61 Living with the end in mind with Wendy Mitchell. 17.07.23 Listen and see show notes and resource.
#60 Advance Care Planning in a relational context with Dr Julian Abel. 10.07.23 Listen and see show notes and resource.
#59 Advance Care Planning from Student Nurse to PhD Student. 03.07.23 Listen and see show notes and resource.
#58 The challenges of Advance Care Planning for people experiencing homelessness with Dr Naheed Dosani. 26.06.23 Listen and see show notes and resource.
#57 The legal framework that underpins Lasting Power of Attorney and Deprivation of Liberty with Victoria Butler-Cole. 19.06.23 Listen and see show notes and resource.
#56 The Court of Protection: Experience of a daughter. 12.06.23 Listen and see show notes and resource.
#55 Lasting Power of Attorney, Deprivation of Liberty Safeguards and the Court of Protection - a family's experience. 05.06.23 Listen and see show notes and resource.
#54 Anticipatory prescribing: what it is, what research tells us and what we can do better with Dr Ben Bowers. 29.05.23 Listen and see show notes and resource.
#53 The power of Memorial Jewellery with Ros Wood. 22.05.23 Listen and see show notes and resource.
#52 The Elephant in the Room Advance Care Planning simulation training with Dr Anna Steel. 15.05.23 Listen and see show notes and resource.
#51 Marking anniversaries and walking alongside a person who is grieving. 08.05.23 Listen and see show notes and resource.
#50 Conversations that are making a difference with Martin Whiskin 13.03.23 Listen and see show notes and resource.
#49 Reflecting on Conversations About Advance Care Planning with Martin Whiskin 06.03.23 Listen and see show notes and resource.
#48 To dialyse or not to dialyse? How research can support decision making with Dr Lucy Selman 27.02.23 Listen and see show notes and resource.
#47 The importance of having a will in place with Sara Sheppard 20.02.23 Listen and see show notes and resource.
#46 Clare talks on the Magnificent Midlife podcast with Rachel Lancaster 13.03.23 Listen and see show notes and resource.
#45 Fast Track CHC: Accessing Care to support Advance Care Planning with Jo Armstrong. 06.02.23 Listen and see show notes and resource.
#44 Why you need a Lasting Power of Attorney - Clare is a guest on the Medics Money podcast. 30.01.23 Listen and see show notes and resource.
#43 Clair Fisher re-release. 23.01.23 Listen and see show notes and resource.
#42 Advance Care Planning across ages - Common ground and challenges. 16.01.23 Listen and see show notes and resource.
#41 How to find a voice for Advance Care Planning when you can’t talk, with Speech and Language Therapist Sophie Whitehead. 09.01.23 Listen and see show notes and resource.
#40 Working when living with a terminal illness with Joanne Smithson and Sam Royston. 28.11.22 Listen and see show notes and resource.
#39 ReSPECT and Advance Care Planning with Dr Zoe Fritz. 21.11.22 Listen and see show notes and resource.
#38 Advance Care Planning and dementia with Wendy Mitchell. 14.11.22 Listen and see show notes and resource.
#37 Choice is meaningless unless you know all the options with Holly Lyon Hawke holistic funeral director. 07.11.22 Listen and see show notes and resource.
#36 If I get dementia, will they serve me meat? Advance Care Planning for vegans and vegetarians with Amanda Woodvine. 31.10.22 Listen and see show notes and resource.
#35 When doing nothing is doing everything with Dr Erica Borgstrom. 24.10.22 Listen and see how notes and resource.
#34 Featherbed Tales and the power of voice with Caroline England. 17.10.22 Listen and see show notes and resource.
#33 How Conversation Analysis can support Advance Care Planning with Professor Ruth Parry. 10.10.22 Listen and see show notes and resource.
#32 Using tender conversations in Advance Care Planning with Dr Kathryn Mannix. 03.10.22 Listen and see show notes and resource.
#31. Organ Donation: hope and transition after an unexpected death with Vicki Caldwell, mother of organ donor Fee. A special episode re-released for Organ Donation Week 2022. 26.09.22 Listen and see show notes and resource.
#30 Following up Zoe’s pledge to sort out her Digital Legacy 20.09.22 Listen and see show notes and resource.
#29 Why an Advance Care Plan should include your finances with Toby Freeman 06.09.22 Listen and see show notes and resource.
#28 The Platinum Rule and Advance Care Planning with Dr. Harvey Max Chochinov 05.09.22 Listen and see show notes and resource.
#27 Frailty and Advance Care Planning with Dr Patricia Cantley 29.08.22 Listen and see show notes and resource.
#26 Advance Care Planning in Diabetes Management with Dr David Strain 22.08.22 Listen and see show notes and resource.
#25 Reflecting on Conversations About Advance Care Planning with Martin Whiskin 20.06.22 Listen and see show notes and resource.
#24 Sally and the Brain Bank. 13.06.22 Listen and see show notes and resource.
#23 Anticipatory Care Planning in Scotland with Dr Tony Duffy 06.06.22 Listen and see show notes and resource.
#22 The role of End of Life Doulas in Advance Care Planning 30.05.22 Show notes and resource.
#21 How Joy Lists can help Advance Care Planning with Andrew Saunderson 23.05.22 Listen and see show notes and resource.
#20 Organ Donation: hope and transition after an unexpected death with Vicki Caldwell, mother of organ donor Fi 16.05.22 Listen and see show notes and resource.
#19 Advance Care Planning in Canada & running a national Advance Care Planning Day with Karine Diedrich 09.05.22. Listen and see show notes and resource.
#18 Making Memories with Karen Pardoe 02.05.22 Listen and see show notes and resource.
#17 The Waiting Room Revolution with Dr. Hsien Seow and Dr. Samantha Winemaker 25.04.22 Listen and see show notes and resource.
#16 The views of Disabled People on Advance Care Planning. What we can learn from research by scholar activist Gill Loomes-Quinn 18.04.22 Listen and see show notes and resource.
#15 Tower Hamlets Advance Care Planning Project with Lauren Preece 11.04.22 Listen and see show notes and resource.
#14 What can happen if you don’t have an LPA in place & a story of systematic failure. 04.04.22 Listen and see show notes and resource.
#13 Title Donating Your Body for Medical Education with Kim Claridge 28.03.22 Listen and see show notes and resource.
#12 DNACPR: Case law, headlines and facts with Ken Spearpoint 21.03.22 Listen and see show notes and resource.
#11 No Barriers Here with Gemma Allen & Dr Jed Jerwood 14.03.22 Listen and see show notes and resource.
#10 Advance Care Planning and Learning Disabilities with Sue Marsden 07.03.22 Listen and see show notes and resource.
#9 Advance Care Planning & learning from research 28.02.22 Listen and see show notes and resource.
#8 My Care Matters with Zoe Harris 21.02.22 Listen and see show notes and resource.
#7 Advance Decisions to Refuse Treatment with Celia Kitzinger 14.02.22 Listen and see show notes and resource.
#6 How to start your Digital Legacy with James Norris 07.02.22 Listen and see show notes and resource.
#5 Planning ahead for end of life care with critical care and former End of Life Care paramedic with Jim Walmsley 31.01.22 Listen and see show notes and resource.
#4 Talking about planning ahead with family and friends with Sonia Kinnair 24.01.22 Listen and see show notes and resource.
#3 The role of Treatment Escalation Plans in Advance Care Planning with Dr Amy Heskett 17.01.2022 Listen and see show notes and resource.
#2 Using What Matters Most and the Dignity Question in Advance Care Planning with Dr Miriam Colleran 10.01.2022 Listen and see show notes and resource.
# 1 How to ensure your plans are heard with Clair Fisher 06.01.2021 Listen and see show notes and resource.
About Clare
I am a Registered Nurse with 30 years’ experience in End-of-Life Care (EoLC). I have worked in hospices, the community, and acute sectors as a Clinical Nurse Specialist and at a regional level as a Consultant Nurse for the Gold Standards Framework. I am a CQC Specialist Advisor for EoLC and a Lasting Power of Attorney Consultant. I also campaign for proactive Advance Care Planning.
Bespoke Consultancy
If you’d like to find out more about my work contact me.