100 podcasts 1 blog
Conversations About Advance Care Planning
On 15.12.2021 I released my first podcast with an aim to improve professional understanding, raise public awareness and normalise conversations about Advance Care Planning. Fast forward to July 2024 and one hundred episodes have been released, each focusing on a different element of Advance Care Planning. The podcast was also featured this year as part of the Dying Matters resource which I am tremendously proud of – you can find the podcast and recommended reading list here.
I have been privileged to talk with professional experts and experts by experience. From these podcasts have I built an easily accessible repository of information about on Advance Care Planning. You can access these Conversations About Advance Care Planning directly through my website (go to resource/podcast), or through your usual podcast provider such as Spotify Apple and Amazon. The website will provide you with additional links and resource not accessible through podcast platforms.
This blog celebrates those 100 episodes, the fabulous guests I have spoken with and groups the podcasts by theme. My aim in doing this is to provide an easy reference guide, it will be useful if you are trying to find specific information for yourself, a family member or to share with your team at work. Listening to the episodes will enable you to:
· Gain detailed understanding of a specific element of Advance Care Planning
· Gain a general understanding of Advance Care Planning
· Start a conversation with a loved one
· Reflect on an episode as part of CPD
· Add to your work resource/intranet
I have grouped the podcasts in to the following themes, some will appear more than once as appropriate.
Advance Decisions to Refuse Treatment (ADRT)
Advance Decision to Refuse Treatment with Celia Kitzinger
Canada
Advance Care Planning in Canada & running a national Advance Care Planning Day with Karine Diedrich
The challenges of Advance Care Planning for people experiencing homelessness with Dr Naheed Dosani
Capacity
Mental Capacity: it’s decision specific not a binary concept with Dr Maggie Keeble
Children
Advance Care Planning across ages - Common ground and challenges
Community
Tower Hamlets Advance Care Planning Project with Lauren Preece
Companion Voices
Companion Voices with Judith Silver
Continuing Healthcare & Fast Track Continuing Healthcare (CHC & FTCHC)
Fast Track CHC: Accessing Care to support Advance Care Planning with Jo Armstrong.
Conversation and communication skills
Talking about planning ahead with family and friends with Sonia Kinnair
The Waiting Room Revolution with Dr. Hsien Seow and Dr. Samantha Winemaker
Using tender conversations in Advance Care Planning with Dr Kathryn Mannix
Conversation Analysis with Professor Ruth Parry and how we can use in Advance Care Planning.
The Elephant in the Room Advance Care Planning simulation training with Dr Anna Steel
Think Talk Act with Wendy Hills
Critical care & Treatment Escalation Plans
The role of Treatment Escalation Plans in Advance Care Planning with Dr Amy Heskitt
Talking through the intersection between critical care & EoLC with paramedic Jim Walmsley
Death Café
Why I started a Death Café with Ewout Van-Manen
Dementia
Advance Care Planning and dementia with Wendy Mitchell
Living with the end in mind with Wendy Mitchell
What living well with dementia looks like with Peter Berry and Deb Bunt
Diabetes
Advance Care Planning in Diabetes Management with Dr David Strain
Disability
Dying at home, what you need to know and how to be prepared
Dying Matters
Dying Matters with Dr Lucy Pain
Finance
Why an Advance Care Plan should include your finances with Toby Freeman
Frailty
Frailty and Advance Care Planning with Dr Patricia Cantley
Getting Your House in Order: a model for Advance Care Planning
Getting Your House in Order: Thinking about what matters most to you with Clare Fuller & Dani Ayre
Getting Your House in Order: Thinking about the things you do want with Clare Fuller & Dani Ayre
Getting Your House in Order: Thinking about what you don’t want with Clare Fuller & Dani Ayre
Getting Your House in Order: Thinking about who would speak for you with Clare Fuller & Dani Ayre
Getting Your House in Order: Legacy & memory making with Clare Fuller & Dani Ayre
Getting Your House in Order: Planning End of Life Care with Clare Fuller & Dani Ayre
Homelessness - EoLC for people experiencing
The challenges of Advance Care Planning for people experiencing homelessness with Dr Naheed Dosani
Ireland
Using What Matters Most and the Dignity Question in Advance Care Planning with Dr Miriam Colleran
Kidney disease
Living and Dying with Kidney Disease with Dr Barny Hole & Dr Emma Murphy
Terminology and language around discontinuing dialysis with Dr Barny Hole & Dr Emma Murphy
Last Days of Life
Alison Gardner & Sophy Horner Last Days Matter
Lasting Power of Attorney
Why you need a Lasting Power of Attorney
Clare talks on the Magnificent Midlife podcast with Rachel Lancaster
Lasting Power of Attorney with Gary Rycroft
Lasting Power of Attorney and Deprivation of Liberty safeguards
The Court of Protection: Experience of a daughter
Learning Disability
Advance Care Planning and Learning Disabilities with Sue Marsden
Legal elements of Advance Care Planning
What can happen if you don’t have an LPA in place & a story of systematic failure.
Memory making & Legacy
How to start your Digital Legacy with James Norris
Making Memories with Karen Pardoe
Following up Zoe’s pledge to sort out her Digital Legacy
Featherbed Tales and the power of voice with Caroline England.
Marking anniversaries and walking alongside a person who is grieving
Northern Ireland
Occupational Therapy
Helping to see the person behind the patient with OT Justine Robinson
Organ Donation (organ donation & donating your body for medical education)
Title Donating Your Body for Medical Education with Kim Claridge
Organ donation with Dr Radha Sundaram
Personal experience and reflections
Advance Care Planning through the lens of a surgeon, daughter and patient with Dr Liz O’Riordan
Why we need to talk more about Ordinary Dying with Lizzi Collinge
What Matters Most in action and the power of Communication and kindness with Caroline England
Advance Care Planning: Listening not box ticking with Professor Alison Leary
Advance Care Planning: making it real with Tara Humphrey
Stopping chemotherapy: Treatment, hope and time with Louisa Nicoll, wife of John
How to ensure your plans are heard with Clair Fisher
Research associated Advance Care Planning
Advance Care Planning & learning from research with Sarah Combes
When Doing Nothing is Doing Everything with Dr Erica Borgstrom
To dialyse or not to dialyse? How research can support decision making with Dr Lucy Selman
ReSPECT & DNACPR
DNACPR: Case Law, headlines and facts with Ken Spearpoint
ReSPECT and Advance Care Planning with Dr Zoe Fritz
Rwanda
The Safari Concept with Dr. Christian Ntizimira
Scotland
Anticipatory Care Planning in Scotland with Dr Tony Duffy
Advance Care Planning across ages - Common ground and challenges
Frailty and Advance Care Planning with Dr Patricia Cantley
Series summary
Reflecting on Conversations About Advance Care Planning with Martin Whiskin
Conversations that are making a difference with Martin Whiskin
Having fun with Advance Care Planning
Planning not panicking Advance Care Planning with Martin Whiskin
Student Nurse and Advance Care Planning
Advance Care Planning from Student Nurse to PhD Student
What Matters Most & documenting plans
How to ensure your plans are heard with Clair Fisher
Using What Matters Most and the Dignity Question in Advance Care Planning with Dr Miriam Colleran
My Care Matters with Zoe Harris
How Joy Lists can help Advance Care Planning with Andrew Saunderson
The role of End of Life Doulas in Advance Care Planning
The Platinum Rule and Advance Care Planning with Dr. Harvey Max Chochinov
Advance Care Planning in a relational context with Dr Julian Able
David Bowie & Advance Care Planning: a conversation with Prof. Mark Taubert
The End of the Road Show - how the arts can support Advance Care Planning with Su Squire
Wills & funerals
The Importance of having a will in place with Sara Sheppard
What we can learn about S46 funerals with Evie King
Working and living with a terminal illness
Working when living with a terminal illness with Joanne Smithson and Sam Royston
Closing reflections
Creating this list of themes has been very reflective and reminded me what a breadth of information and knowledge has been created through the podcasts. I am very proud of the work and have learned so much and look forward to creating more episodes in the future.
You can support the episodes by liking, reviewing and sharing them on your usual podcast platform. Should you wish to sponsor future episodes contact me.
If the blog has helped you or provided information and you would like to support my ongoing work, head to Buy me a coffee – thank you!
